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Screenshot 2025-03-28 at 15.57.31

Living with PNH in your 20’s

Posted on March 28, 2025

Check out this article recently published in Rare Revolution magazine where our trustee Virginia Bertelli and one of our volunteers, Jovi discuss their experiences of living with PNH.

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Super Rare Campaign 2025
PNH Support celebrates its 10 Year Anniversary!
Posted in News

Upcoming Events

Sep 19
10:30 am - 12:00 pm

East Anglia Group Patient and Family Face-to-Face meeting

Nov 7
10:30 am - 12:00 pm

Online PNH Patient and Family Meeting (Zoom)

Mar 20
10:30 am - 12:00 pm

East Anglia Group Patient and Family Face-to-Face meeting

May 8
10:30 am - 12:00 pm

Online PNH Patient and Family Meeting (Zoom)

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    Recent Posts

    • EHA 2026 Congress: Representing the PNH Community
    • PNH Support celebrates its 10 Year Anniversary!
    • Living with PNH in your 20’s
    • Super Rare Campaign 2025
    • Join in with Super Rare 2025!

    Recent Posts

    • EHA 2026 Congress: Representing the PNH Community
    • PNH Support celebrates its 10 Year Anniversary!
    • Living with PNH in your 20’s
    • Super Rare Campaign 2025
    • Join in with Super Rare 2025!

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    Upcoming Events

    Sep 19
    10:30 am - 12:00 pm

    East Anglia Group Patient and Family Face-to-Face meeting

    Nov 7
    10:30 am - 12:00 pm

    Online PNH Patient and Family Meeting (Zoom)

    Mar 20
    10:30 am - 12:00 pm

    East Anglia Group Patient and Family Face-to-Face meeting

    May 8
    10:30 am - 12:00 pm

    Online PNH Patient and Family Meeting (Zoom)

    View Calendar

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